Welcome Home

On Friday, June 8th, 2018, our 2nd daughter, Lyla Drew Ogg came rushing into this world like a tornado.   Mom delivered in a record time (for us) and both Lyla and my wife are doing absolutely amazing. Due to the speed of the delivery, our “birth plan” went flying out the window, however, we […]

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Creating Our Future

Three months after receiving the news that I had Retinitis Pigmentosa, my wife and I had a discussion about adding another head to our family. With so much uncertainty in front of us with my failing vision, it seemed absolutely crazy to add another child to our family. In fact, it is INSANE.   So […]

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A Short Film – Blind Devotion

Every once in a while the internet delivers. My wife found this video when we first were diagnosed and I could barely watch it then, it was still so new and this video seemed like a preview of what our lives held. It’s still impossible to watch this now without the tears coming down, but […]

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One Year Later – I’m Still Going Blind

One year ago today, my life changed.   On June 1st, 2017, I was diagnosed with an incurable disease. This incurable disease is called Retinitis Pigmentosa and it’s making me go blind. Today, I have 15% vision remaining. The diagnosis answered a lot of the questions I had as to why I was seeing so […]

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Inspiration – Jim Platzer

A few weeks ago, my wife sent me the below video. She stumbled upon after seeing a picture of Robert Herjavec, from the TV Show “Shark Tank,” with Jim Platzer, a man who has 5% of his vision remaining due to Retinitis Pigmentosa.     After watching this video I was in awe. Not only […]

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Try Again…

Well, with some time passed and life at an all time high of being crazy, here are what we’ve learned in the past two months. eSight As I mentioned in my post about our eSight TrialĀ , we opted to do the In-Home trial of the glasses. It took a bit longer than expected to receive […]

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Daylight Savings

For as long as I can remember, I’ve held a profound hatred for Daylight Savings time. I despised going to work in the dark and coming out in the dark, I loathed the limited amount of hours to actually be outside in the sun. Before June 1st, 2017, I thought it wasn’t just me, but […]

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Reaching Out

Accepting that my vision is detonating is hard. Seeing it affect my family, loved ones and me as a person is hard. Taking the steps to accept this unacceptable reality is seemingly impossible but if there is a will, there is a way… As I deal with the realities of our future, I have been […]

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eSight Trial (Video) – Our Experience

Having poor vision is a challenge. Whether it’s a simple task like taking the trash out to the curb at night or reading the mail, some of the easiest and most mundane tasks are becoming increasingly difficult with my vision fading. I know that right now, there is no cure for Retinitis Pigmentosa, however there […]

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Support

With the time passing and our life continuing it’s change, we find ourselves tackling massive mountains wearing sandals. We aren’t prepared for these battles, for these acceptances or for the anger that it can bring forth. I’ve always found value in advice from others that have been through a similar situation. They’ve been down a […]

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