… not exactly what you want to hear. Just a few days after our annual Retinal checkup, the words are still resonating. The truth is still hard hitting and well… it sucks. My ophthalmologist is a great doctor and was the first one to confirm that I had Retinitis Pigmentosa several years ago. At our […]
It’s been a minute… Since I’ve had the free time to actually sit down and compose. Life has been wild these past few months. My busy season for our business, travel, conventions, family, the holidays… the list goes on and on. Through these past few months, a lot has changed, as life does constantly. Some […]
The past few months, black eyes and all, has been a time of realization. A time of acceptance. There is no doubt that i’m losing my vision and even though I fight and tell myself that it’s not progressing, it is. One of the scariest things about losing your vision is ambiguity. The uncertainty of […]
Matt, Blind to Billionaire, shares his life with Retinitis Pigmentosa. With the pictures he paints through example, experiences he shares and the realities that he faces, well it’s exactly on point. Thank you for sharing this Matt.
I started skating when I was about 10 years old and skateboarded until I was in my early 20’s. The injuries and broken bones added up and I hung my skateboard up at age 23. As someone with RP, I can’t believe Dan Mancina’s skill, determination and passion for continuing to skate with only 5% […]
This disease sucks. Some days I feel like my vision hasn’t gotten worse and others, well I know it has. For the past 10 years, i’ve “dealt” with failing vision. I assume a lot of things. I know that the sky is blue, I know that the trees are green and I know my home […]
Today, which happens to be Valentines Day of 2018, I was greeted with a loving card from my beautiful wife. Now, that isn’t really that abnormal on this holiday, however, my favorite part of the card was that my wife found a card that I could actually read without my magnifying glass or digital magnifier. […]
Just a couple of weeks ago, we attended my yearly appointment with my Retinal Specialist. The day comes every year and it’s not looked forward to. I had been preparing myself for the day for months in advance and whether or not that is helpful is arguable. I worry, I fret and I constantly prepare […]
My wife put this together for me. It blew my mind and touched my heart in ways that i’m unable to convey in words. The words, love, honesty and support that what is shared in this video, well they took my breath away. Thank you to my wife for creating this monumental document of support […]